When I feel like a failure

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Sonny sometimes has meltdowns when we are out and about on our adventures. He had one a few weeks ago on Hampstead Heath when I told him he wasn’t allowed to get naked. He had one when we went to the mini village with my mum because it was too busy and crowded. He sometimes has one for what seems to be no reason at all.

I don’t like the word meltdown because it sounds like he is made of wax. But I can’t think of a better word to use so it will have to do. For Son, a meltdown refers to a combination of the following behaviours: crying uncontrollably, falling to the ground, kicking off his shoes (he hasn’t hit anyone with them yet but I feel it is only imminent), biting, head butting, hitting, running away etc.

The other day Sonny had one of the biggest meltdowns I have ever seen. Thankfully we were at his house when it happened (it started just when we were walking back to his house and continued for what felt like 3 hours but was probs only about 15 mins). His parents came back home and his Dad heroically stepped in and calmed him down. His meltdown then triggered my own kind of meltdown (I didn’t throw myself on the floor screaming but I did have a bit of a cry).

It has been four years since I have known Sonny, and yet it is still hard for me not to take it personally. I felt sad because I thought he hated me and that he never wanted to see me again. And in that moment I felt angry at the fact he has autism and was experiencing so much pain (autism acceptance is sometimes harder in those situations!). It felt so unjust that he has to go through that, and I couldn’t do anything to take it away. The helplessness of it is unbearable. Failure felt pants. But then I pulled myself together because this whole thing is way bigger than me, and how I feel.

I have always wanted Sonny to live a big life, or at least provide him with the opportunity to. But what comes with that is a hell of a lot of risk. He might like where we go or he might not. His eyes might light up when he sees a new animal, he might say a new word or try and make friends with another child, and he might hurl himself on the floor in tears and refuse to get up. Unpredictability is kind of his thing. Perseverance is kind of mine.

If I want him to experience all the good times, of course there are going to be some bad. Bite marks and hair loss come with the territory. If I want him to live a big life and try new things and go on adventures then by definition there is risk. To feel the peaks you got to feel the troughs. In my opinion it is worth it.

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